Extracorporeal photopheresis (ECP): Month 1

 

 

A quick “up to speed” for anyone just checking this link out. My history is with severe Crohns disease, non responsive to all standard Crohns drugs, and to all trial drugs I could get my clammy hands on (Remicade, Humira, Entyvio, Stelara) and then the out lying immune depressant drugs. I am now excited to be trying a new treatment called extracorporeal photopheresis, extracorporeal photochemotherapy, or extracorporeal photoimmunotherapy. Those are long words but I hope that will catch anyone looking it up who may also be starting it or wondering about the treatment. This will be much easier to read than the other internet options.

In short. I get hooked up to a machine and I.V. line, it cycles 1.5L of my blood separating the white blood cells by centrifuge. The separated white blood cells then get mixed with a chemical (8-methoxypsoralen) which is UV (ultraviolet) sensitive. The mixture is run under a UV light that makes the whiteblood cells go into this state called apoptosis. These cells are then pumped back into my body, which in turn tricks my body into attacking these cells instead of my immune disease. This gives the parts of my body that my immune system is usually trying to constantly destroy a much needed break and chance to heal.

My first month is over, it was 8 x 4 hour sessions. Tuesdays and Wednesdays with appointments between 7:45am and 1pm. So that is 32 hours of being hooked up to this machine. This month has taught me a lot and I’m much more prepared now and can start experimenting with what I can and cant do with bending the rules. It was very overwhelming at first but my support system is dope. When I faced what I knew could become fears, it became easier and less scary.

What I have noticed this first month is that, as messed up as I think I am, other auto immune diseases are just as hard, if not harder than my journey. My treatment room has two machines so I get to sit across from another person receiving the treatment for their issues like: T-cell Lymphoma, Type 1 Diabetes, Multiple sclerosis, and a bunch of other non responsive immune diseases. So everyone there is having a hard time. Spending that much time next to people also going through tough shit is really helpful, most have great insights and tricks or tips, and some don’t want to be bothered. I try to be friendly and if I’m engaged by the other patient I will start a conversation but if not I just bug the nurses because they HAVE to deal with my constant questions.

It is important to have empathy and compassion for everyone in that room. “Don’t be a rude dick or if someone else is a rude dick use it as a lesson on how not to be a rude dick” I really don’t care how sick I am or how big my problems feel, if the 70 year old lady with lymphoma who cant move herself can be nice, so can I. I try to understand the nurses are at their job too, they handle rude dicks well, but are people going through their own lives and issues as well. I should be a good part of their day not a bad part. The patient next to me could be having the worst day of their life that day and they are in no way obligated to recognize me as a fellow human. But most do because they have compassion and empathy in that moment, if not stressed. They owe me nothing and its not a competition of who has it worse, if you’re in this club we all have had our challenges and have been broken or given up at one point.

Before my appointment I keep as hydrated as possible without drinking too much that a washroom is needed…because I’m hooked up to the machine, which isn’t easy to stop and unhook, so bedpan it is. Which it perfectly acceptable to use but also means the nurses have to deal with it later. The hydration keeps my vessels nice and plump, easier to work with, and faster to draw from, all which save time. Fatty foods the day before, up to treatment time, should be low in fat, fat in the blood stream is hard to distinguish from white blood cells so the process takes longer. The machine gives me a blood thinner mixed in, so calcium and magnesium pills are taken to offset some of the loss of those minerals during treatment. Some people try to arrive tired so they can sleep through it all. That doesn’t work for myself. Also this process varies in time greatly. So appointments might be early, on time, or very late. Nothing anyone can do but guess. Waiting might be a thing but no one is to blame, except the machine, I can totally blame the machine…it doesn’t even have feelings, stupid machine with your beeps and chemicals “Ou look at me I save people” shut up machine you self righteous prick.

As for the treatment itself, I try to wear comfy clothes with easy access to the arms for the nurses. T-shirts are preferable, I tried muscle shirts but the nurses really don’t like putting  tourniquets on bare skin. My treatment center has a endless amount of blankets if a t-shirt isn’t enough to keep warm (blood does cool off while out of the body) if under blankets, or sleeping I try to keep my I.V. arm in the open so the nurses can see whats going on without worrying crap went wrong under the blanket and waking me up, also I pretty much never move that arm unless I want to be stuck in there forever with constant alarms beeping and going off. Time passes however I spend it, a good conversation can make it fly by, or my phone is a great distraction, if one can use their non I.V. arm, if not, it’s a good time to work on becoming ambidextrous. They said to bring a laptop or book if I wanted, but I really don’t think that would work with the amount of arm movement I need to type or turn pages.

Treatment is just laying there comfy for a few hours. With constant checks of blood pressure and that you are in fact, alive. The machine probably goes off a few times for random reasons and keeps the nurses busy. There is no pain. This isn’t a complicated step.

After treatment things may be a little interesting, but results may vary! First of all my blood is now UV sensitive so any UV light hurts. I thought when they said to avoid sunlight they were crazy, me the guy who lives for summer isn’t going to avoid sun. Until I met the sun, felt like my eyes had arc flash burn, or in other words gives me a huge headache and eyes hurt. apparently skin can sunburn easily too, but after a couple rounds, sunlight is no longer my friend and I didn’t stick around in the sun enough to find out. Avoiding sunlight is important even through windows and stuff, so I’m finding things that don’t involve exposure to UV rays. My solutions so far have been, yoga at the gym, anything with friends at night or indoors, video games, more drawing, and starting to look at more small business courses online to follow so I’m not completely lost when I enter the work force again. I would like to set up a stationary bike to practice balance stuff, but we will see how that goes.
My immune system is working crazy hard after treatment, so I have a fever and exhaustion on top of what my Crohn’s symptoms are. Headache is bad but isn’t a migraine, It drives you to the edge but doesn’t push you over. Just fever, pain management, and sleep for a few days and I’m ready for my new indoor life!

Putting in place and system of routine and mental checks is the only way for me to get through this without falling into a deeper depression. My body and mind want to be comfy and to do things tomorrow, but those a tricks of my mind, tomorrow I will feel the same when I wake up and will put it off another day. I realized I think of myself in the future as “perfect” as in when planning the next day  I think of my future self as full of motivation, with a good attitude, energy, and no procrastination. But that has never happened once. I feel the exact same so it’s better for me to put tasks in place the moment I should, instead of delaying them, no matter how I feel. So I think critically and worst case scenario, what do I have to have in place to not get depressed or catch me as I fall. Routine, activity, socialization, critical thinking, goal achieving, and mental check ups are all things my body doesn’t want to do, but it doesn’t matter what my mind wants because it is a trick of my human existence. So I have a routine, started an achievable gym routine. I have talked with friends and family about keeping up socialization, I try to look at myself from a third person point of view to identify and fix weaknesses that may come up or develop. I’m trying to set new goals to achieve, so that I can get a reward system without the sun. I have put in place my psychiatrist, psychologist, family doctor, and specialists to keep me with regular check up during the next year, and will use each of those to help identify what I may need to work on. I won’t be perfect, I may not be jubilant, I will struggle and I will overcome. I believe in the lessons taught, from the struggle of life and I believe that I still have hope. Even if I go extended periods of time without feeling it.

Quick pros and cons:

Pros:

-This could make me feel better in a year.
-I’m rearranging my reward system to not use summer as a crutch which may make all year a more bearable time.
-I have set up support for when I fail.
-These regular appointments help grow my compassion and routine.
-I get to wear cool sunglasses all the time, also received a purple blanket from the drug company.
-I get to overcome and push my limits of what I know I can accomplish and deal with.
-This makes my diet better and hydration a priority.
-I get to work on other skills, like writing, blogging, drawing, talking, video games, creativity, and learning.
-A more aggressive chemo therapy wont be as much of a shock if other illnesses require it in the future
-Gives me hope for my future.
-I will be a much more convincing ghost on Halloween

Cons:

-No sunlight.
-Fever, more exhaustion, and headache at least 3 days a week.
-Takes Time
-Cant sun tan with super hot babes all the time on a yacht. This treatment is the ONLY thing holding me back from that.
-Have to interact with humans and not just my cat.

So if you are starting this treatment, thinking about it as an option, looking for a friend, or just looking out of curiosity. I hope this can help at least one person feel better about going into it or just dealing with their own struggle, what ever that may be.

Also I kinda want to write a book…anyone know how you do that? Like do I just start typing and post it as a PDF or do I go to like contact a book person. If you have any tips on how to get more than 4 people to read it when finished, hit me up at Rii Projects on Facebook. Now stay out of the sun, son!

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Back To The Drawing Board

Back to the drawing board
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I have held off on the blog part of Rii, for the better part of a year. Not by abstraction or negligence but for the purpose of not filling it with, for a lack of better term, the darker side of chronic disease. I have written many things with the potential to be posts, but when dealing with things like depression, anxiety, or life challenges,  It is sometimes best to deal with those things internally before spreading it around in written word.
I already get embarrassed enough re-reading the old posts I prematurely posted before my mental state was flushed out. I also don’t need the attention or concern of people thinking I’m in trouble that I can’t handle, when in reality, I’m just sorting out my own thought through text .  I do enjoy the old posts, in a certain way. Life is a roller coaster of uncertainty and change, it gets wild. When one can see what was going on inside one’s mind during a different stage in life it can be fun. Although through this last stage I decided to suspend the public journal.
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The reality of physical restriction has been an absurdly tough problem to solve. At many stages of illness during the past 6 years I have felt the need to modify my entire outlook and approach to life and my approach to physicality. Unfortunately that hasn’t stopped. I keep chipping back my physical activity and goals, in hope of preservation and longevity.  It hasn’t been enough. I will use BMX as the example as it is the most telling. It started with things like not doing drops to flat. Those hurt healthy people and even than it is just a satisfaction of being able to take the hit that is the reward. Then I restricted pursuing the competition style riding I enjoy most because the tricks do hurt even if executed properly.  Then it moved on to things like taking off my pegs, because those encourage riding things like hand rails, with huge risk, or just dealing with the physical shock of metal/metal contact and no suspension to absorb the impact. After that I started padding up an insane amount, then reinforcing over top my pads. Sport braces on most parts of my body, until I look like a hockey player. But even then the prednisone induced paper skin and calcium depleted bones can no longer take any stress. The risk assessment at this point just says don’t do it! To even pedaling around aggressively.
I bike because I hold a large amount of personal worth in it and it is the base of my entire social circle also because I need to keep some sort of physical activity in my life, to slow the progression of bodily decay. The adrenaline is the only thing that makes dragging my body into physical activity worth it, I bike to stay healthier, yet it destroys my health…that math problem doesn’t make sense.  I took apart the entire internal philosophy of what biking is to me and decided I value athleticism.
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I do not get star struck, or fall under the idolization of many people. To me; the band wrote songs about feelings that they had, the movie star acted entertainingly. I absolutely appreciate the talent involved and the passion that produces such entertainment, but to put them above my social behaviour fails me. I don’t project my own envy onto them. Not to say I’m completely unaffected by celebrity,  I will absolutely take a selfie with Tegan and Sara or Jay Leno but I feel that is more of a social bragging right, at least to me.
The person that has their entire house decked out in their favourite team and knows every stat is an important part of support for that team, but to me in equates the person  that dresses up as their favourite hero at Comicon and knows every “fact” about their hero. I mean, it is such an important role of keeping those things going as entertainment and I don’t mean to bash people who support the things that entertain them. But to me by the time the person who builds scale models is finished their scale model car, they could probably have chopped and channelled an entire full sized 32 ford chassis and been half way to the real thing. The person who supports their team could probably coach a local team, the person who likes spider man could probably write their own comic. Maybe they do and I’m ignorant, but I value myself more than the thought of someone else’s achievements and it shows by not putting a proportionate value in celebrity.
A sole marathon athlete is probably the closest I come. The amount of respect I have for a long distant runner, swimmer, or biker is very high. There is no cheating that dedication, no negative thoughts, no giving up. Maybe it’s because I relate it to my journey, it’s not fun, but there is no time to doubt or making excuses, one keeps going and accepts responsibility for the things one doesn’t control like, the wind and elevation change, one acknowledges the challenge, puts it behind and keeps on pushing. That’s the shit to respect.
Don’t accept what others can do as the limit, don’t accept your limits as the pinnacle, nothing but progression and dedication. If one ran harder yesterday one would be even faster today. Accept one didn’t run the day before and keep going so one can be faster for the next day. Nothing but short challenges and self-discipline to finish the marathon. Seeing a top marathon athlete, that’s the person who didn’t make any excuses, that’s the person who fucking pushed it.
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I have tried hard to be a person like that but I find my excuses of physical injury, sickness, energy, and motivation don’t hold the test of time. I haven’t given up but when I hit a wall of exhaustion where I should push through and run off my mental strength I have found my tendons and muscles decide to peace out and leave me broken for sometimes (like my inner pelvis) months. To try and replace biking with track and field I hit the same obstacle of physical injury. Also, maybe most importantly I don’t experience any adrenaline in between, or do anything visually entertaining for others.
hako1
Once realizing athleticism may not be an achievable goal as a pass time this point in life, I moved onto my next biggest enjoyment, cars! They say, once too old for extreme sports you get a roll cage. Roll cages cost money so that fell on its face as quick as it came into my mind; I have a couple cars and can’t afford to fix any of them without months of planning and frugal solutions. I can’t even afford horsepower, haha my race car has 160hp! Racing and crashing isn’t going to work.
So now I draw, I’m getting better and it helps me in the way sports do mentally, I won’t give up on physicality but the restrictions keep tightening and biking has become a chore that is done out of principal. Landing tricks hurt, trying tricks hurt, skate parks don’t have nice bathrooms, taking the mental hit of underperforming is hurtful on the ego of one’s own ability and a reality check of my personal digression and the progression of my own disease. I do it but only when I can find enjoyment from the act and not as something I push myself for.
Cars will be done in the same way, I’m not going to push my budget but if I can afford it I will and I don’t need so many projects.
Art I guess will be my next adventure. Draw cool things because I enjoy it not because I have to, or because I see a monetary gain in it….just draw and dream. Until the day I have the health and resources and can build upon things instead.  If it never comes that is something I have to accept. I feel cornered but I alone have the choice of how I deal with this corner and to find the solutions that elude me. This is why I haven’t posted much lately, this challenge of accepting my fleeting physicality has pushed me to a point passed communicating while problem solving, it still comes out with a tint of darkness when just explaining my situation with a concentration on being positive. But fuck it I need writing to go along with these new pictures!  Enjoy!

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Movin On Up

Well here is an update on me. First of all huge thanks to my father for helping me replace my computer, I was going crazy with my leg busted and nothing to make me feel productive. As far as broken limbs go, this one really hasn’t been that bad. Immobility has been the only real annoyance, my mood has been good, pain is almost non existent and with the ability to produce art again that has really helped pass the time. I feel lucky (relatively) for having such a bad break mixed with waiting so long to get it looked at I do feel it has been a relative easy journey with no signs of a permanent pirate peg leg walk hanging around.

leg

Some exciting things have also been going on during all this. My wonderful girlfriend and I moved into a basement suite which is something really fun and needed. Saskatoon has been fine but with all my family, tools, and vehicles in Prince Albert it was really hard over the past year trying to make it feel like home, when half my life was still where I grew up. The last place I was staying was great but a 10x12ft room with no storage and two people living in it was not meant to be sustainable for more than a couple months let alone over a year! I was getting strong pulls for Prince Albert but Sydney pulled off the impossible! She found us 10x the space, good location, no roomates, good area, with the option of pets for the future, and in budget, but most importantly a small garage that is all mine!

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LSX F-40 Missile   Inspired off of the style of artist Khyzyl Saleem

Very grateful to move with such a resourceful woman, going from good roommates to living in a pair is a pretty fun adventure but also more of a difference than I expected…and stupid expensive. Who budgets what pepper costs or that you need more than 2 forks and a dish towel. Family becomes a great resource for microwaves, plates, and furniture. Luckily for us sydney is the eldest and first to move so we had first pick of treasures from her old household.

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Hakosuka wall tap at FD Long Beach

being able to create my own environment without restriction from consideration of what is normal or expected is amazing. I am not a person to stress over a broken glass or muddy shoes. It breaks, you fix it. No need for blaming with loud words or even serious acknowledgment. Shit happens and life goes on, but you cannot be in someone else s house and act like that, you need to respect their things and rules and living space, as it should be. But having to worry about menial things isn’t a thing I do naturally so my own space is nice, I can drive a rc car all over the house or set up a balancing skateboard in the middle of a room or leave my paints and sewing machine out without having to worry about someone else’s concerns…well except Sydney, who will probably keep me grounded so I don’t end up building a rally car in the kitchen or a half pipe in our bathroom.

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Widebody Porsche 550

Having a garage is HUGE! I haven’t had one in maybe 4 years? and still that was my fathers who understandably wasn’t very impressed with his son cutting cars in half to see what happens, but he still let me and I still like cutting things in half and learning things for myself. Having my own industrial grade creative space has allowed me to bring up my drift car and tools which makes me feel a lot more comfortable calling Saskatoon my home and planning on longer term residence. Now when something breaks I can fix it without borrowing tools or wishing I was in prince albert and even better I can start and finish my own projects and ideas with experiments that most people wont see the value in, but I no longer have to explain them and worry about over stepping boundaries on someone else’s land. FREEDOM! (p.s. my neighbors have drift trikes and old cars too, so pretty cool bonus)

scott

To Celebrate Back To The Future Day -AE86

But I have still been immobile so a lot of digital art has been produced and I think I have improved quite a lot. I found an artist that pretty much does exactly what I do which was a surprise to say the least, originality isn’t so original after all, but its pretty cool to see someone else’s take on modifying cars and their concepts. He also may even do it as a profession for EA which is neat as well that a studio can see a value in it. So here are a few of my new photoshop creations to go along with my update.

1970sccaclose

Historic Livery  SCCA Trans-Am inspired 2015 Mustang (scratch drawn)

 

Fast forward to December.

Balance is the source code to life, my world was rocked a little when I went to go pick up my first pet (Stark the tuxedo kitty). While I was out my bike was stolen from the back seat of my truck. My fault, seems the door wasn’t locked, no glass was broken. The truck itself was in a very tucked away position in my back alley parking spot in a quit neighborhood. So quite a shock. I haven’t had a bike stolen or go missing since I started to seriously bike my life 1o years ago. I guess after 10 years security relaxes and dangers ignored but that has now changed after this terrible wake up call.

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Porsche 919 night run

 

It fucked up my life pretty hard, I think the menial thing of life don’t bother me because they aren’t important to me, my bike is important to me, even when I can’t ride it or enjoy it. the presence of it is important. I did everything I could, made Facebook groups, police reports, posters, and talked to all the bike shops. It paid off in the end after a week in the hands of extremist hostage takers (not really) it was recovered mostly in one piece missing the front end but much better than having to try to get a new one. It is so central to my life I always thought I would just instantly buy a new one. But when reality came crashing down, it’s not a normal bike. It would take 2-3 months to order in the factory parts I need without a guarantee I can even get the ones I want, get parts custom machined, hope I get all the geometry right, and then break it in and hope nothing fails right off the bat and start to build trust in it. LET ALONE COST, its the most important part of my life, so money is no object it would never stop me from enjoying what I love but there is still a reality and when you sew your clothes back together along with take use less shampoo to save money. A world class bike isn’t a drop in the hat. I could go the sponsor route to get a new bike but with my health and the amount of ups and downs it brings I really couldn’t agree to  obligations to represent anyone. Some times I can ride my bike with skill but that takes a lot of effort, planning and luck and only works for a very short time before my bodily restrictions end it. More than often I just ride it a little to go shit talk at the skate park with friends or stare at it with piece of mind.

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Datsun 2000 with 240z front end (scratch drawn)

Losing my bike was a wake up call in priories of my person. Same day I lost it I put 5 cars for sale and any other things of value I could sell, and didn’t care. Its nice to know what make you whole and teaches you to put a fucking lock on it. I was quite sullen for the week it was gone, angry at random points in the day and didn’t sleep well. The biking community was great over 100 people shared my poster and had 5-10 guys that would show up instantly if any clues popped up as to where it was located. Funnily enough I was informed it was stolen even before I even knew myself, I received a call from a BMX’er who wanted to know if it was missing because he was watching another person ride it down a street downtown. Just seeing another person on my bike was enough to make him question its status. Good stuff.

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599 Desert Run

Here are just a few concept drawings I have created. They are fun and I still make them but I’m happy with the skill I have reached. So I decided to bite the bullet and start on 3-D design and video game coding which is a huge step for me. That will be for another update, for now enjoy my weird concept cars.

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Tried to un-ugly a Pagani Huayra

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snowbus

Really fun scratch drawn picture

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Slant Nose 911

 

 

Crohns Bones 

It’s been awhile since a story of Crohns
So here is a tale about weak bones

Predisone tends to suck out the density
I felt that this month with quite intensity

I had a miss step and started to flop
Then fell to the ground with a snap crackle pop

I rolled on the ground with pain in this case
For my foot was sideways and out of place

Luckily enough it found its way straight
So I figured a dislocation was its only fate

I rested in bed for a whole week
But the pain didn’t stop and I started to shriek

I took my ankle, all black and blue
To the nearest emergency hospital room

The doctor said it was not a sprain, actually quite broke
Two inches of my fibula? That must be a joke

I have walked around for several days
How could it be broken off in so many ways?

Nobody knows but sit and DO NOT STAND
Unless you want a club foot for traveling the land.

So to a hospital bed for a few days
Until we can open you up like on a episode of Grey’s

Now Count to 10 and enter a delirium
And wake up with 7 new screws and high grade titanium

My leg is stapled back and I thought it was over
But the medications took a toll and had me hunched over

My weak stomach could not take the hit
So now Crohns attacks every bit

Dealing with the leg now becomes secondary
Having to manage both is just the cherry

Off to the bathroom like a kangaroo
That is missing one leg out of the two

But it gets better and better everyday
I just hope I can walk while winter is at bay

A double hit really isn’t that bad
But missing my summer makes me mad

I’ll just play some forza in my room…
But after a couple days it turns to a tomb
Restless and night because there is so much to do!

Fix up a barn for my winter retreat
But it will be useless with out electricity and heat!

I can’t do another winter, not like the last
It doesn’t help right now being stuck in a cast

As this all happens something new comes by
A new biological medicine to try

So Limp to the clinic and grab an I.v.
Now sit in a chair you cannot leave

side effects hopefully won’t be crazy
But no one has tried it, so details are hazy

Don’t get me wrong, Im still glad to try
I just hope I don’t wake up growing a third eye

This entire year feels like a mess
My symptoms and life, have given me stress

Every moment I remember how lucky I am
But my feelings ignore it and don’t give a damn

What to do when you are stuck in self pity
But consciously know your attitude is shitty

In my mind I want to do my best
But right now I just sit here and rest

It’s easy to hate the rut that I’m in
When I can’t find the solution needed to win

More possessions won’t be the answer.
But being productive might remove this cancer

So I think I’ll heal then pull up my shorts
Head to the gym and try out some sports

It might be not be building a car, or riding my bike
But the only way up is by starting to hike

Amperage

(Sorry for the lack of visuals, my computer decided to fry its hard drive along with a lot of media, information, and pre written posts. I did have some backed up data but will still need to save for a new computer. So maybe just some philosophy instead of pictures and videos for a few months)

Electricity is something I often forget has such a deep relation with life; sure the 120v outlet and streetlights might be the first thing that crosses the mind. But really neurons released electrochemical pulses across the mind first. The protons and neutrons make up the atoms that are held together by electromagnetic waves and build matter itself. The brain is trillions of electrical waves that process other waves to create our existence.

Electricity’s role in life might be a bit weird to think about but not completely abstract. Waves, now there is something that is a bit more abstract to think about, at least for myself. Where ever electricity is present so are electromagnetic waves. So Electromagnetic waves are everywhere just like electricity but the many types of waves tend to play with my comprehension of life but also are very humbling to my own arrogance.

Lets start with visible light, everything we see around us is just radiation of a certain frequency wave that meets up with our eyes, each color is picked up by a cone in our eyes that creates waves in our nerves that excite waves between neurons and we see that color. Vision is something most people have a confidence in, but ever hear of a tetrachromatic person? They have a mutation in the eye of a fourth cone, each cone in the eye creates a mix of 100 different wavelengths so the normal 3 in a eye lets the average person see a million different colors, tetrachromatic people have a fourth cone so that number becomes 100 million! That is just one cone and it sees an entire world other people don’t. It may just be shades of colors between the visible light spectrum but still quite surprising what we don’t see even when color is part of almost everything in our life.

Sound waves travelling through the air give us hearing and the nerves on our fingertips give us touch and the receptors in our nose give us signals about what we smell. All these senses create everything to us yet they are only tools optimized for humans needs and small pulses of energy from our own cells. Humans process a few waves and think we are the peaks of all of existence. These waves are just a tiny part of wavelengths. Ever hear of rattlesnakes detecting a persons heat? Infrared is a wavelength just out of our eye threshold, and it carries heat, we feel it, but cannot see it besides its effect on visible light. Snakes “see” the heat, the dark doesn’t matter because it’s not in the wavelength of light, so night no longer exists to its receptors. That’s just the next step of wavelength frequencies and already color and light is no longer present. It can move onto microwaves and x rays and a few more. But the point of all this comes to radio waves, think about the radio. We turn on the stereo and listen in but if you think about it there are 100’s of radio frequencies carrying information all around us. We just turn on a mechanical receptor and listen in…

Think about it, there are songs, commands, communication all around, surrounding us every moment and we see and hear none of it, it doesn’t exist to us, until we turn it into our own frequency. We can be so confident in our ways or lifestyle with morals and beliefs that we kill each other yet every second an entire universe we don’t see or smell or feel if right there and we never hear the music until we tune into the right frequency. We think things are impossible or supernatural yet live in a small part of a gigantic chain of wavelengths and feel and see an even smaller part. Go take a drink of water and realize we take that glass of water and think we know everything about it enough to build religions, life goals, and wars around it. That water is a filtered empty space. We never could imagine the ponds or lakes and oceans let alone ice and rain or whales and coral reefs. To think we know what life is about is so naïve. You know nothing John Snow.